Tag Archives: JDRF

T1D Ignorance Day Two

Well. Hard to even figure out how to start this one.

Let me start this way. Yesterday I posted this.

Needless to say. The best “apology” that came up was this:


Okay. I understand that the restaurant is your livelihood. I get that. We all have the right to make a living and do so in whatever way works best for us within the confines of the law. Oh. I said WITHIN the confines of the law. That sign did actually break a few, not to mention it was morally repugnant.

So then, his bestie at the local newspaper, pens this. If you don’t want to read the entire article, or give his newspaper more clicks then it deserves, I’ll quote portions of it here, and break it down for everybody, including the author, Mr. Perry White.

“This is truly as American as apple pie. Attacking Mike’s is equivalent to bombing Main Street.”

That quote was in reference to the outrage that ran through the T1D community yesterday when the picture of the sign that was hung in the restaurant was posted ON the restaurants page BY the restaurant. So. People outraged about a sign is the same as someone killing people. Great moral compass there Mr. White.

“But Mike offered up one thing that some people are jumping on as discrimination: he has a sign asking people who need to inject themselves with medication to do it in the privacy of the bathrooms.”

Sorry, but I’m not going to ask anyone to stick a needle into their skin, in the same place where people (excuse the term) poop, potentially causing the introduction of infectious materials into their insulin or their body, because a few people were uncomfortable. That’s unsanitary, and frankly ridiculous.

“I am a Type II diabetic, and I inject insulin. One type I use is taken just before my main meal, and I have from time to time been forced to take my injection pen with me. I have NEVER used that injection pen in public. I usually use it before I get out of my car, but I have also used it in a mens room. The inconvenience to me is nil. And more importantly, the inconvenience and discomfort to others in the restaurant is also nil.”

(FYI I left his typo, not my circus, not my monkeys, in case you’re wondering Mr. White, Men’s Room, not mens… great editing there.)

First off. I’m so very sorry that you have such badly controlled Type 2 Diabetes that you are taking insulin. May I recommend a gym membership and a better diet than Mike’s Pig Pen? (also, do me a favor and read this, it goes into more depth of how I actually feel about a lot of type 2’s). I am also so sorry that you have to take insulin before your “main meal”. My darling husband, and all other REAL diabetics like him (you know the ones that can’t lose their disease, and have been on insulin since they were CHILDREN), have to take insulin before or after EVERY meal, not just their “main” meal. They also have to take a long acting once or twice a day, and correct for any highs that may occur during the day. Look it up. Educate yourself. Type 2 is NOTHING, and I mean NOTHING like Type One. The only similarity is the name, and SOMETIMES the medications that are taken. Speaking of the children part, you’re telling me that a parent should take their squirming, restless, possibly scared, diabetic child (as young as infant or toddler age) into a BATHROOM where they could likely end up on a floor, or having to sit them on the toilet or counter to give them their necessary insulin shot. Right. Let me know how that works out. Oh, and you’re “forced” to take your pen with you. Right… again, so sorry. We carry a case with my husband’s insulin EVERYWHERE we go. Because it’s how we keep him alive. And being that we live in the south, it travels into every restaurant, store, or friend’s house we go into, since insulin shouldn’t be kept in the heat.

“For activist diabetics (bet you never thought you’d see that combination of words) to suggest the only place they can shoot up their insulin is standing on the counter of a small diner is little more than arrogance — and an unwillingness to consider the feelings of others.”

Damn right we’re activists. SOMEONE has to stand up for the Type 1’s to shout down all you squeaky wheeled Type 2’s. Watched TV lately? How many NEW AND IMPROVED medications are out there for Type 2’s and how many are out for Type 1’s. Get a grip. And NO ONE said they were going to stand on the counter. They just wanted to be able to inject at their seat, and not be shoved like some pariah into a dirty bathroom. I know needles make other’s uncomfortable. I have a daughter that doesn’t exactly enjoy watching her dad give himself shots. BUT. She also knows that it is what KEEPING her father ALIVE. And so if she doesn’t to see, she like everyone else on the planet, can LOOK AWAY.

“There are important causes out there to take up. When you do so, take up one that will yield positive results. But this isn’t one of them.”

You are correct. There are lots of important causes. Type 1 Diabetes is one of them. As much as you may not understand it in your narrow minded view of Type 1 being exactly like Type 2. Which I recommend a trip for you also, one last link for you Mr. White and those that think the same way, to http://www.JDRF.com. Educate yourselves on the differences. Yes, there are LOTS other causes as well, as we all know there is plenty of social injustice going on in the world. But, don’t talk down to us, like we’re stupid children, when you obviously don’t know the difference between your illness of Type 2 Diabetes, and the auto-immune DISEASE that is Type 1 Diabetes. So, thanks for the “advice” (I use the term extremely loosely), and I think I’ll keep to my “cause” of being an activist for Type 1 Diabetics.


T1D Ignorance 


This situation popped up on my Facebook news feed today since I follow a few T1D pages. They are a great source of inspiration, laughs, and information that I can share with my hubby. I may not be the T1D in this house, but I am a strong advocate.

This was the picture that was posted:

This conversation happened with the owner of the meme page not long after:

I don’t even know where to start. Mostly I will let the ignorance speak for itself, but just in case you were wondering… T1D (or T2D for that matter) is NOT contagious. Also, the needles used for injections are so very thin and tiny rarely does the person injecting bleed. As well, this is a massive violation of ADA laws. Lastly, unless you are claiming that your bathrooms are cleaner than your dining room, it is quite unsanitary to administer injections in a bathroom. Oh, and by the way, although now removed, this picture was posted BY the restaurant.

In case you were wondering if this “fine” eatery is anywhere near you or someone you love, here is the info from their Facebook page:

May I suggest the Wendy’s up the road for your meal instead?

Some say ignorance is bliss, but, I think in this case, ignorance makes you look like a huge arse.

Life as a Wife of a Type 1 Diabetic

I started this a couple years ago, and put it to the side. I feel the need to finish it now though, and hope it will explain a few things. I know this isn’t my usual crafty stuff, and I’ll get an update on that soon too, but this needed to happen first.

Many of you lovely readers that know me, know that DH is a Type 1 Diabetic. Diagnosed right before Halloween when he was 11 years old. Learned how to give himself shots, check his blood sugar, got lists and lists of “dos and don’ts”, and got chased around by nurses trying to get him to eat peaches *giggles*

Before this diagnosis, he was an aspiring hockey player (he is from the frozen Midwest after all) with not a care in the world (as any 11 year old should be). Now we have a son, not much older than that, I can’t even begin to imagine.

As a wife though, from the time I found out (funny story there), to now, I have given shots, spoon fed Lucky Charms, waited anxiously through tests, two eye surgeries, a hernia surgery, and dug through grocery store shelves to find that ONE bag of fruit gummies (his favorite low blood sugar treat) with more of his favorite flavor, and that’s just a tiny piece of it. Because, I love him, and I married him the man, NOT the disease.

Now, to the part that will probably get me LOTS of comments and such. If you are a Type 2 diabetic, go away. No offense intended, at all, but in 80-95% of cases, you can get rid of your diabetes (to those in the small percentages, I’m not talking to you). Type 1’s cannot. Ever. It doesn’t matter if they are under, over, or a perfect weight, doesn’t matter if they adhere to the strictest of diets, doesn’t matter WHAT they do. T1D will ALWAYS be there.


I know it seems harsh to say “go away”. But seriously people. There are ways to keep T2D under control to the point of no medication (and before I get blasted, yes I know there is a percentage of people this is not the case for, but you aren’t the ones I’m talking to), or gone completely by doing what your doctors, nurses, exercise coaches, and nutritionists tell you.

All that being said. I’ve read some disturbing statistics over the years. The rate of T1D diagnoses has gone up 23% in the US between 2001 – 2009. Also, I believe it’s somewhere in the 80% range of the funding for diabetes research goes to Type 2, NOT type 1. That being said, if you want to help, http://www.JDRF.org is the place to go. They are dedicated solely to finding a cure for T1D. Push your local and federal leaders to support JDRF and increase the funding to find a cure for this.

My DH has been very blessed. No major problems from his diabetes. One eye has a few issues, he’s had some mild neuropathy. We are exploring options of a cure called Islet Cell Transplantation. It involves surgery, and time away from home, and a myriad of things I won’t get into right now.

What I do want to talk about though, as delicately as I can, without giving away too much information is this. Diabetes not only controls a good chunk of our lives. Not only is factored into every single decision we make. Not only is why I always carry I bigger purse, and snacks everywhere we go. Not only is why we don’t travel much. Not only is all of these things. But it is expensive. We have watched over the years the prices of all the needed medications rise steadily, and rapidly, over the past 15 years. At scary rates. For example:


The second two listed? Those are two of the many prescriptions we buy a month. Not in vial form, and yes, we have insurance. And no, we can’t skip it. Yes, we have skipped other things to pay for this though. Average medical costs per month for us can be upwards of $400. That is prescriptions, alcohol swabs, special foods, doctor’s visits, lab work bills… I think you get the idea. And that’s assuming there are no major problems, and we keep him out of the doctor’s office (or worse, the hospital) for viruses, bacterial infections, and the like. (which by the way, if you’re sick, go away and don’t breathe on me or him, and as much as we care about you, no we will not come visit you in the hospital lol)

So, to all those people that say, “why don’t you get DS more private lessons?”, “what about this or that summer intensive?”, “how about these shoes, tights, clothes?” or sympathetic looks when I say my DD is doing technical college before transferring to a four year, like I’m doing something wrong. When I say back, “no sorry, we can’t.” or “only if there is a scholarship for it.” or “thank goodness my dad is willing to pay for this or that”. I’m not kidding. I’m not lazy. I home-school my DS, keep up with the house and laundry, taxi both kids everywhere they need to go in my 10 year old car, am taking 24 college credits from March to November (that’s 3 credit hours every 5 weeks, or the equivalent of two full 12 credit hour semesters in about 8 months with no breaks. None, seriously, I will finish a class on a Monday and start a new one on a Tuesday), and am seriously looking at any offer of a job, even if it’s bagging groceries.

And you know what. I’m not ashamed. Not of my circumstances. I’m a bit embarrassed for everyone that thinks I should be “doing better”. But you know what? I am happy. I am stressed out sometimes, and seriously wish I would manage to land a winning lottery ticket some days, but I am happy. My kids are happy. My husband is alive, and as healthy as can be expected. All I’m hoping for is a little more understanding. A little less, “oh you all should do this, that, or travel here or there.” It sounds great, it really does, but that’s not where my priorities are. My priorities are educating my children, getting my own education, and keeping my husband as healthy as possible for as long as possible.

Is it really necessary for me to “tell the world” all of this? Nope. But I am tired of people not understanding. I’m tired of trying to make excuses for reasons we can’t go somewhere, or do something. I’m tired of trying to justify why my hubby is sick again (please, PLEASE stop spreading your germs, or just assuming it’s faking, or assuming he’s lazy, or just thinking he’s not doing something, trust me, daily vitamins and pro-biotics on top of all his regular meds are keeping him as healthy as he is, imagine how sick he would be if he didn’t do everything he does) And please understand. Sometimes there is NOTHING we can do. He can eat perfectly, take perfect doses of insulin, everything right, and there are STILL going to be days that sugars go high, or low, or whatever. There are many things that can happen when it does, and the effects can last for a day or two, as well. I will leave you with a little chart that is just a small glimpse of what my darling husband, goes through, sometimes daily…


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