Life as a Wife of a Type 1 Diabetic

I started this a couple years ago, and put it to the side. I feel the need to finish it now though, and hope it will explain a few things. I know this isn’t my usual crafty stuff, and I’ll get an update on that soon too, but this needed to happen first.

Many of you lovely readers that know me, know that DH is a Type 1 Diabetic. Diagnosed right before Halloween when he was 11 years old. Learned how to give himself shots, check his blood sugar, got lists and lists of “dos and don’ts”, and got chased around by nurses trying to get him to eat peaches *giggles*

Before this diagnosis, he was an aspiring hockey player (he is from the frozen Midwest after all) with not a care in the world (as any 11 year old should be). Now we have a son, not much older than that, I can’t even begin to imagine.

As a wife though, from the time I found out (funny story there), to now, I have given shots, spoon fed Lucky Charms, waited anxiously through tests, two eye surgeries, a hernia surgery, and dug through grocery store shelves to find that ONE bag of fruit gummies (his favorite low blood sugar treat) with more of his favorite flavor, and that’s just a tiny piece of it. Because, I love him, and I married him the man, NOT the disease.

Now, to the part that will probably get me LOTS of comments and such. If you are a Type 2 diabetic, go away. No offense intended, at all, but in 80-95% of cases, you can get rid of your diabetes (to those in the small percentages, I’m not talking to you). Type 1’s cannot. Ever. It doesn’t matter if they are under, over, or a perfect weight, doesn’t matter if they adhere to the strictest of diets, doesn’t matter WHAT they do. T1D will ALWAYS be there.

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I know it seems harsh to say “go away”. But seriously people. There are ways to keep T2D under control to the point of no medication (and before I get blasted, yes I know there is a percentage of people this is not the case for, but you aren’t the ones I’m talking to), or gone completely by doing what your doctors, nurses, exercise coaches, and nutritionists tell you.

All that being said. I’ve read some disturbing statistics over the years. The rate of T1D diagnoses has gone up 23% in the US between 2001 – 2009. Also, I believe it’s somewhere in the 80% range of the funding for diabetes research goes to Type 2, NOT type 1. That being said, if you want to help, http://www.JDRF.org is the place to go. They are dedicated solely to finding a cure for T1D. Push your local and federal leaders to support JDRF and increase the funding to find a cure for this.

My DH has been very blessed. No major problems from his diabetes. One eye has a few issues, he’s had some mild neuropathy. We are exploring options of a cure called Islet Cell Transplantation. It involves surgery, and time away from home, and a myriad of things I won’t get into right now.

What I do want to talk about though, as delicately as I can, without giving away too much information is this. Diabetes not only controls a good chunk of our lives. Not only is factored into every single decision we make. Not only is why I always carry I bigger purse, and snacks everywhere we go. Not only is why we don’t travel much. Not only is all of these things. But it is expensive. We have watched over the years the prices of all the needed medications rise steadily, and rapidly, over the past 15 years. At scary rates. For example:

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The second two listed? Those are two of the many prescriptions we buy a month. Not in vial form, and yes, we have insurance. And no, we can’t skip it. Yes, we have skipped other things to pay for this though. Average medical costs per month for us can be upwards of $400. That is prescriptions, alcohol swabs, special foods, doctor’s visits, lab work bills… I think you get the idea. And that’s assuming there are no major problems, and we keep him out of the doctor’s office (or worse, the hospital) for viruses, bacterial infections, and the like. (which by the way, if you’re sick, go away and don’t breathe on me or him, and as much as we care about you, no we will not come visit you in the hospital lol)

So, to all those people that say, “why don’t you get DS more private lessons?”, “what about this or that summer intensive?”, “how about these shoes, tights, clothes?” or sympathetic looks when I say my DD is doing technical college before transferring to a four year, like I’m doing something wrong. When I say back, “no sorry, we can’t.” or “only if there is a scholarship for it.” or “thank goodness my dad is willing to pay for this or that”. I’m not kidding. I’m not lazy. I home-school my DS, keep up with the house and laundry, taxi both kids everywhere they need to go in my 10 year old car, am taking 24 college credits from March to November (that’s 3 credit hours every 5 weeks, or the equivalent of two full 12 credit hour semesters in about 8 months with no breaks. None, seriously, I will finish a class on a Monday and start a new one on a Tuesday), and am seriously looking at any offer of a job, even if it’s bagging groceries.

And you know what. I’m not ashamed. Not of my circumstances. I’m a bit embarrassed for everyone that thinks I should be “doing better”. But you know what? I am happy. I am stressed out sometimes, and seriously wish I would manage to land a winning lottery ticket some days, but I am happy. My kids are happy. My husband is alive, and as healthy as can be expected. All I’m hoping for is a little more understanding. A little less, “oh you all should do this, that, or travel here or there.” It sounds great, it really does, but that’s not where my priorities are. My priorities are educating my children, getting my own education, and keeping my husband as healthy as possible for as long as possible.

Is it really necessary for me to “tell the world” all of this? Nope. But I am tired of people not understanding. I’m tired of trying to make excuses for reasons we can’t go somewhere, or do something. I’m tired of trying to justify why my hubby is sick again (please, PLEASE stop spreading your germs, or just assuming it’s faking, or assuming he’s lazy, or just thinking he’s not doing something, trust me, daily vitamins and pro-biotics on top of all his regular meds are keeping him as healthy as he is, imagine how sick he would be if he didn’t do everything he does) And please understand. Sometimes there is NOTHING we can do. He can eat perfectly, take perfect doses of insulin, everything right, and there are STILL going to be days that sugars go high, or low, or whatever. There are many things that can happen when it does, and the effects can last for a day or two, as well. I will leave you with a little chart that is just a small glimpse of what my darling husband, goes through, sometimes daily…

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Craft Update – April 4, 2016

I couldn’t even call this one a weekly update. *hangs head* I haven’t posted anything since FEBRUARY! For shame…

I do have reasons though. School. Ballet. School. School. Ballet.

Yeah, I’ve been busy. School of course takes priority. Ballet just controls the rest of my schedule. Happy to report that my final grade for my first class at University of Phoenix was a 99.1%. First week of my second class ends today, four more to go.

Anyway.

I haven’t had much time to be crafty. Which is sad. But, as ballet winds down, and I get the hang of this whole school thing, I’m hoping I will find time.

I will update you on the tiny bits of things I have managed to find time for over the past month-ish.

First and foremost the fairy…

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A little bit of background since the last update I think (I hope) if not this will be just a repeat of last time lol…

Okay, the big rippled afghan. I still have “issues” with either gauge or how much yarn this is really going to need, but I’ve decided to just roll with it and see what happens.

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I do like the look and feel of it, so it will just end up being as big as it will be. I figure I’ll just keep going until I run out and although the stripes won’t be perfect, it will still be warm and pretty.

Lastly, I did start another project (yes, I was being a bit ADD about it) but I did have reasons. We were travelling for Aladdin, and at the studio a LOT for Peter Pan, so I needed something a bit more portable than the afghan. When you take up two or three chairs with your project, it stops being reasonably portable (in my mind anyway, I know I tend to spread out a bit with projects, and I try not to be rude and take up way more space than I should).

I found the pattern here and I fell in love with it. It includes one of my favorite yarns, I’ve mentioned before, Boutique Unforgettable, and you’ve seen some of the scarves and things I’ve done with it over the past couple of years. I screwed up a bit when I started, because it is REALLLY a good idea to read ALL of the instructions before you start. I didn’t read the whole “carry yarn along” part, and was tying off every row the first couple of times. Oops. Oh well, I didn’t FROG it or anything I just kept going, I will say it’s much neater this way since you change every row.

Here’s what I’ve got of it so far…

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I will say this is one of the first times I actually bought the yarn by exactly what the pattern said. Usually I pick my own colors, but these just worked for me. We’ll see, maybe by next fall I’ll have it done.😉

That’s it from me today. I might actually go and try to crochet for a bit…

Keep Smiling!!


Weekly Craft Update – February 22, 2016

Happy Monday my lovelies! 

Okay so I’m trying to be more cheery than normal. Because here we are, yet again, in South Carolina with cloudy skies and rain in the forecast for the next few days. Again. We have barely had a week without rain since September. It’s kinda getting old. 

It does leave time for crafting supposedly, but, I didn’t seem to have a ton of time for it this week. Saturday was a good crochet day since we were out of town for ballet again. I also didn’t have to drive thanks to the other male dancer momma so that was a very nice change. 

Updates!

A tiny bit of background done on and off this week. Never seemed to find the patience this week to sit and stitch though so not much. BUT every stitch is progress, so we will stay positive. 

  
Like I said last week. I wasn’t sure if I was happy with the gauge on the newest blanket, so I did frog it and start over. But, I wasn’t too upset since with this super bulky yarn, it works fast. The pattern is easy to keep track of since it’s pretty much all in threes. 

  
The other thing is… Well I may need advice. Michaels had mill ends on sale a couple weeks ago, but they weren’t balled or skeined. So of course I untwisted and started to ball it myself. Let me show you…

I started with this…

  
And now at the moment I have this disaster I’ve been working on off and on for a couple of weeks…

  
So, my question for all crafters out there. When I untwist I basically get a big loop/circle of yarn. Obviously I don’t want to work from this, and need to ball it first. What is the best way to go about this (without having to buy a bunch of stuff) so when I move onto the next “twists” of yarn I don’t have this problem. Should I be hanging it from something? Is this when I should have someone with their hands inside the loop for me to wind from? I’ve never had this before so I’m a little confused. I will keep working on my disaster and will eventually get it balled, but I don’t want to have to go through this every time. I have three more twists for this color and a couple more of another. Thanks in advance for any help!

Okay thanks for getting through my wordy post today folks. Happy crafting and keep smiling!


Weekly Craft Update – February 15, 2016

Totally dropped the ball last week. Sorry about that!

Good news is I have two projects going on now lol. Michaels sent me a lovely 30% off your total purchase coupons, and so I grabbed some yarn for some projects I’ve been drooling over. The first one I’ve started is with Bernat’s blanket yarn. Sooooo soft! Now I may end up frogging this one. Gauge has always been an issue for me. So normally I always go up a hook size to stay in gauge. Well, I’m 6 rows in and already though my first skein. If I’m reading the pattern right I should get close to 10 rows per skein so, I may have to frog it and go back to the original sized hook. It works up super duper fast though, so if I do, it won’t take long to get back to where I am. But here is what it looks like so far…

    
I have gotten a lot of background work done. Or at least it feels like a lot to me.:) I won’t babble on about it. I’ll just give you a picture…


Have a great week everybody! Keep smiling!

 


Weekly Craft Update – February 1, 2016

Wow. February already!?!? Where has the time gone? 

Well just a quick update from me this week. I did get some stitching time in, which made me very happy. I also bowed to the masses (here and on Facebook) that have kept asking about her eyes. Hopefully she’s not as creepy as she was before. More background done as well, and some more work to the flower in her hair. 

Here is your picture:

  
Keep smiling everybody! Keep crafting, keep doing what you love. 


Weekly Craft Update – January 25, 2016

Well…

Last week was definitely not a good one for steps. Not to give too much TMI, but I was just feeling blah and really didn’t want to move. Somewhat it was the weather, some was hormones, and just one of those weeks. 

But…

It is a new week, the sun is shining again and no point in dwelling on what I didn’t accomplish. Time to focus on what I can do this week. 

One thing about being lazy… Lots of bum in chair stitching time (way more than I should have probably) but, I’m also at the frustrating, there are no big blocks of the same color part of the background. For new readers, I stitch a little weird. I start in the middle (I do read directions… Sometimes). But, I tend to pick a color, and do everything I can reasonably get to (I don’t like to skip a bunch, yes I know it’s counted cross stitch, but mistakes tend to happen more the more squares counted) and then I switch to another color and do the same. So, when there aren’t large blocks of color together, I tend to get frustrated and annoyed. But. I also love the way it looks with all the detail in the end so I know it’s worth it, doesn’t stop me from wanting to chuck it out the window though. I also have a slight obsession with finding edges, especially in the big pieces like this. Also, I do all single color stitches first, and then the blended. Told you, I’m weird. Times like these though, the weekly pictures are a huge help, so I can actually see that I did make progress lol.

Okay, enough rambling. Here is your picture…

  
On a personal note. Well a few things. I have been online gaming some again, and I have my friends (who I will call Banana Man and Slippers) to thank for making it loads of fun. And I want to wish a happy birthday to Dr. Fox… An old friend who hasn’t been around much, but when I put the date at the top, I remembered that it is tomorrow.❤

Keep smiling, keep crafting and most of all, have fun!


Weekly Craft Update – January 18, 2016

Happy Monday everybody. I hope you had a great weekend. 

Busy week as always, and not as much stitching time as I would have wanted, but I did get some done. Trying to get my 10,000 steps in every day has gone fairly well, only day I missed was Sunday, and I think I might declare that my official lazy day of the week. We all need at least one of those right?

Progress has been made, mostly on the background this week. It has to be done, but it is a bit tedious as there aren’t many large blocks of color. 

Here is your picture for the week…

  
Have a great week everyone! Keep smiling!!


Weekly Craft Update – January 11, 2016

Look at me, second Monday of the year and I am actually remembering to post. Considering how crazy busy life has been these first eleven days of the new year, I’m pretty proud of myself. 

A bit of a non-crafty update first…

Back for my birthday my DH got me a Fitbit. He had received one from his best friend for his birthday back in July, and so it was time for me to get in on the action. I love it. The watch itself is fairly accurate at counting steps, and since the model I have also tracks my heart rate and sleep patterns, it is thankfully very comfortable to wear nearly 24/7. Obviously I don’t wear it in the shower and it does need to charge occasionally (which I have found works best if I just toss it on the charger whenever I am getting a shower or bath, since I can’t wear it then anyway). The default setting is 10,000 steps a day, plus 10 flights of stairs. I took my DH’s advice and bumped it down to 5,000 steps and left the stairs where it was. I soon found that I was averaging between 6,000 and 7,000 steps a day and close to 20 flights. So, within the first week, I changed my goal to 8,000 and 20 flights. I did not manage to hit that daily, but for the most part, I did well. I knew I weighed in at about 150ish pounds when I got it, and I know I was snugly fitting into a US size 10 jeans. Not terrible I know, but, to put into perspective, before kids, I was maybe 110 pounds and fit into a size 3. I knew I wouldn’t get back there quickly, so I set my weight goal for 130 pounds and just paid more attention to keeping moving more throughout the day. As of a couple days ago, a few things have happened. I am comfortably into a size 7 jeans, and to date have lost a total of 13.4 pounds, putting me at 136.6. My goals are now tougher. Upped back to 10,000 steps a day, and pushing it to 25 flights. Since I am a bit of a Netflix junkie, I have found the best thing I can do, is start an episode (usually around 45 minutes give or take), strap 5 pound ankle weights on each leg, grab my 3 pound hand weights and walk in place on our mini trampoline. I like that since I do have a few joint problems, and so walking on the tramp gives me a softer service to walk on. Then I’ve added doing stuff with my arms to start toning them up too. I’m less than 3 years from the big 4-0, and I think 40 is gonna be pretty. ;) 

Okay! Enough bragging. 

I have also made time to stitch. I say made, because it is important to me, and I find it very soothing. Not many changes this week, but as I’ve always said, progress is progress even if it is just a few stitches. So, here’s your picture. 

  
Also, I got a lovely present in the mail. A dear friend of mine, Sady, knows how much I adore owls. So, she colored this for me, full of purples (my favorite color), and just full of love and light. I had to share it with all of you. I will get a frame for it soon, and put it somewhere I can see it often. 

  
That’s all for me today. Happy crafting, keep smiling!!


Happy 2016!!

So here we are, new year has begun, the holidays are over and we are off and running.

2015 was an interesting year. It brought lots of changes. Some good, some bad. But, change in general is a good thing, even if you can’t see it right away. I am happy to report that we all survived another nutcracker season, and in the process I managed to loose 10 pounds or so. I am putting that to now being in a two story house, and the Fitbit that I got for my birthday back in October. 

So, here we are, the first Monday of 2016. I am going to try to get back into my weekly craft blogs as well as writing other things. I do have English comp this semester at school so I will do my best. 

Here is my (now annual) post holiday crafting roundup as well as update on the fairy. I have actually gotten some work done (started the year off right, with lots of butt in chair, Netflix watching day of stitching)

Gifts that were given that haven’t been posted are as follows. Two double knit wraps in my favorite yarn I found last year (see last January’s post holiday blog), and another ripple afghan in lion brands homespun. 

  
  
  
And last but not least. The fairy. Most exciting thing is, I found the top!! I was thinking I’d never get there. Only a couple of stitches, but it’s there!

  
I think that’s everything today. Keep smiling and craft on!


2015 in review

The WordPress.com stats helper monkeys prepared a 2015 annual report for this blog.

Here’s an excerpt:

A San Francisco cable car holds 60 people. This blog was viewed about 380 times in 2015. If it were a cable car, it would take about 6 trips to carry that many people.

Click here to see the complete report.


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